A life-saving medicine for children with Batten disease, a rare and fatal genetic disorder, is set to be pulled from the ...

"She's brave and she never gives up — that inspires me to do it myself," Garland Benson tells PEOPLE of his sister Christiane, who suffers from Batten disease Wendy Grossman Kantor is an award ...

The two boys will be participating in the 5K along with their cousins, Korry Sharp, 19, and Rachael, 16, who both have Finnish Late Infantile Batten Disease. For the boys, it”s a chance to spend ...

A temporary reprieve for a Vancouver Island family after their terminally-ill daughter will continue to have access to ...

32,404 people played the daily Crossword recently. Can you solve it faster than others?32,404 people played the daily Crossword recently. Can you solve it faster than others?

The family of nine-year-old Charleigh Pollock will continue to be covered for the drug, which costs $1 million a year, until ...

CLN2 Batten disease is an incurable genetic disorder that causes rapid decline in a child's ability to walk, talk and see. Phoebe, from Coventry, said daughter Flory's doses of Brineura ...

Provincial funding of 9-year-old Charleigh Pollock's life-sustaining treatment has been extended by 3 months until the end of ...

The mother of a six-year-old girl with a rare neurodegenerative disease has urged health bosses to "do the right thing" amid fears over the future of the medication she takes. Flory, from Coventry, ...