A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...

The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to people with cystic fibrosis ages 2 and ...

When my daughter, Elara, was diagnosed with cystic fibrosis at just 1 month old, my world shifted in an instant. As a mother to a 5-year-old, I was no stranger to the ups and downs of parenting, but ...

The Paul di Sant’Agnese Legacy Society is a group of Cystic Fibrosis Foundation supporters who have made a lasting commitment by making a legacy gift. It is a special way for us to honor your gift, ...

Despite its prevalence and impact, there is no CF-specific guidance for the assessment and management of pain. The Cystic Fibrosis Foundation assembled an expert panel of clinicians, researchers, ...

I was diagnosed with cystic fibrosis-related liver cirrhosis in 2004 at the age of 9. Growing up, my disease wasn’t something to be pitied or seen as a weakness. It was a strength. I had the mentality ...

Caring for a child with CF is challenging in more than one way. My daughter’s struggles often bring up my own mental health obstacles, making it difficult to be fully present for her when she needs me ...

This blog discusses suicide and suicidal ideation. If you or someone you know is suicidal, please contact your physician, go to your local ER, or call/text the National Suicide Prevention Lifeline at ...

Living with cystic fibrosis demands a complex regimen of care and treatment. Across the U.S., managing this care involves navigating a maze of health insurance coverage and significant out-of-pocket ...