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Detroit Lions VP raises awareness for daughter's rare disease
Like most children, Morgan enjoys games, showing off her toys, and spending some time on her tablet. But sadly, unlike most ...
Massachusetts father and son seek answers on shared medical mystery
Keegan Paradis grew up watching his father, Brendon, lose his vision to a condition no one could name. "My wife said, 'Take ...
Local family of boy with rare disease raises awareness, spreads hope
Feb. 28 is Rare Disease Day and Channel 9 is spotlighting a local family working to shed light on rare diseases all year long ...
Addie Garvey, born with Moebius syndrome, organizes 'Kindness Is Everything' campaign to champion inclusivity
Addison “Addie” Garvey is a Melville 10-year-old who enjoys dance and cheerleading, loves to read and write and plays drums ...
Loughborough University1d
New Research highlights challenges and support needs for families living with Noonan Syndrome
A groundbreaking study has shed light on the lived experiences of families raising children with Noonan Syndrome (NS), a rare genetic condition that can impact health, development, and daily life ...
WebMD2d
What Is Turner Syndrome?
About 70,000 women and people assigned female at birth in the U.S. live with Turner syndrome. A pediatrician should be part of your child's Turner syndrome care team. (Photo Credit: E+/Getty ...
theasianparent.com3d
Noonan Syndrome: Symptoms, Causes, and Treatment
Cari tahu gejala hingga cara merawat indrom Noonan, kelainan bawaan penyebab perawakan pendek hingga cacat jantung!